{"id":19470,"date":"2026-04-16T13:38:31","date_gmt":"2026-04-16T11:38:31","guid":{"rendered":"https:\/\/sahb.samuraidev.ch\/la-vita-e-troppo-bella-per-arrendersi\/"},"modified":"2026-07-02T09:00:00","modified_gmt":"2026-07-02T07:00:00","slug":"la-vita-e-troppo-bella-per-arrendersi","status":"publish","type":"post","link":"https:\/\/sahb.samuraidev.ch\/it\/la-vita-e-troppo-bella-per-arrendersi\/","title":{"rendered":"La vita \u00e8 trop\u00adpo bel\u00adla per arrendersi"},"content":{"rendered":" \n
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Fino al 2020 Andrea Dick, elet\u00adtro\u00adni\u00adca di for\u00adma\u00adzio\u00adne e in segui\u00adto mon\u00adta\u00adtri\u00adce di appa\u00adrec\u00adchi pres\u00adso Roche Sviz\u00adze\u00adra, era una per\u00adso\u00adna mol\u00adto atti\u00adva. Insie\u00adme al suo com\u00adpa\u00adgno, la dina\u00admi\u00adci\u00adt\u00e0 era all\u2019or\u00addi\u00adne del gior\u00adno. Che si trat\u00adtas\u00adse di scia\u00adre, fare escur\u00adsio\u00adni o cam\u00adpeg\u00adgio con la loro ten\u00adda da tet\u00adto, i due era\u00adno spes\u00adso e volen\u00adtie\u00adri in giro. Dal 22 otto\u00adbre 2020 tut\u00adto \u00e8 cam\u00adbia\u00adto: Andrea Dick si \u00e8 amma\u00adla\u00adta di COVID-19. All\u2019i\u00adni\u00adzio sem\u00adbra\u00adva che aves\u00adse supe\u00adra\u00adto l\u2019in\u00adfe\u00adzio\u00adne. Tut\u00adta\u00advia, ne \u00e8 sca\u00adtu\u00adri\u00adta una supe\u00adrin\u00adfe\u00adzio\u00adne e un gra\u00adve caso di Long Covid. Per Andrea Dick \u00e8 ini\u00adzia\u00adto un perio\u00addo pie\u00adno di sfi\u00adde, poi\u00adch\u00e9 le sue capa\u00adci\u00adt\u00e0 fisi\u00adche sta\u00adva\u00adno venen\u00addo meno. <\/p>\n

Una vita in mutamento
\n<\/strong>Gi\u00e0 poco dopo l\u2019in\u00adfe\u00adzio\u00adne, Andrea Dick ha sen\u00adti\u00adto che qual\u00adco\u00adsa non anda\u00adva. Ha rice\u00advu\u00adto la dia\u00adgno\u00adsi di Long Covid dopo accer\u00adta\u00admen\u00adti inten\u00adsi\u00advi, ma mol\u00adti sin\u00adto\u00admi non qua\u00addra\u00adva\u00adno del tut\u00adto. Tra i distur\u00adbi di Andrea Dick c\u2019e\u00adra\u00adno distur\u00adbi neu\u00adro\u00adlo\u00adgi\u00adci fun\u00adzio\u00adna\u00adli, fati\u00adgue, pro\u00adble\u00admi di son\u00adno e cre\u00adscen\u00adti limi\u00adta\u00adzio\u00adni del\u00adla mobi\u00adli\u00adt\u00e0. Ini\u00adzial\u00admen\u00adte riu\u00adsci\u00adva anco\u00adra a cam\u00admi\u00adna\u00adre per qual\u00adche cen\u00adti\u00adna\u00adio di metri con i baston\u00adci\u00adni da trek\u00adking. Dopo una nuo\u00adva rica\u00addu\u00adta nel dicem\u00adbre 2023, le sue capa\u00adci\u00adt\u00e0 fisi\u00adche sono peg\u00adgio\u00adra\u00adte ulte\u00adrior\u00admen\u00adte. Ha avu\u00adto biso\u00adgno di un deam\u00adbu\u00adla\u00adto\u00adre. Con ogni ulte\u00adrio\u00adre bat\u00adtu\u00adta d\u2019ar\u00adre\u00adsto, i tra\u00adgit\u00adti che riu\u00adsci\u00adva a per\u00adcor\u00adre\u00adre diven\u00adta\u00adva\u00adno pi\u00f9 bre\u00advi. Oggi la tren\u00adta\u00adno\u00adven\u00adne rie\u00adsce a fare solo pochi pas\u00adsi in auto\u00adno\u00admia e non \u00e8 pi\u00f9 in gra\u00addo di sali\u00adre le scale. 
\n<\/strong><\/p>\n

Come se non bastas\u00adse, nel\u00adl\u2019e\u00adsta\u00adte del 2024 \u00e8 arri\u00adva\u00adta la suc\u00adces\u00adsi\u00adva bat\u00adtu\u00adta d\u2019ar\u00adre\u00adsto. Andrea Dick ha avu\u00adto di nuo\u00advo il COVID-19 e ha subi\u00adto una gra\u00adve set\u00adti\u00adce\u00admia dopo una biop\u00adsia inte\u00adsti\u00adna\u00adle. Anco\u00adra una vol\u00adta ha dovu\u00adto affron\u00adta\u00adre un lun\u00adgo perio\u00addo in ospe\u00adda\u00adle e sog\u00adgior\u00adni in ria\u00adbi\u00adli\u00adta\u00adzio\u00adne. Da allo\u00adra, pi\u00f9 che mai, dipen\u00adde dai mez\u00adzi ausiliari. <\/p>\n

Mez\u00adzi ausi\u00adlia\u00adri per una mag\u00adgio\u00adre indipendenza
\n<\/strong>Con il sup\u00adpor\u00adto del\u00adla FSCMA, dopo il deam\u00adbu\u00adla\u00adto\u00adre Andrea Dick ha rice\u00advu\u00adto una car\u00adroz\u00adzi\u00adna adat\u00adti\u00adva con il pro\u00adpul\u00adso\u00adre elet\u00adtri\u00adco E\u2011Motion. In que\u00adsto pro\u00addot\u00adto, i moto\u00adri elet\u00adtri\u00adci sono inte\u00adgra\u00adti nei moz\u00adzi del\u00adle ruo\u00adte. I mez\u00adzi ausi\u00adlia\u00adri pro\u00adven\u00adgo\u00adno dal depo\u00adsi\u00adto AI del\u00adla FSCMA e sono sta\u00adti revi\u00adsio\u00adna\u00adti e mes\u00adsi a dispo\u00adsi\u00adzio\u00adne rapi\u00adda\u00admen\u00adte. Per Andrea Dick si sono aper\u00adte nuo\u00adve pos\u00adsi\u00adbi\u00adli\u00adt\u00e0: \u00abNon ho mai volu\u00adto esse\u00adre spin\u00adta in car\u00adroz\u00adzi\u00adna, l\u2019E\u2011Motion faci\u00adli\u00adta enor\u00adme\u00admen\u00adte la mia vita quo\u00adti\u00addia\u00adna\u00bb, racconta. 
\n<\/strong><\/p>\n

La FSCMA ha anche pia\u00adni\u00adfi\u00adca\u00adto di ristrut\u00adtu\u00adra\u00adre l\u2019ap\u00adpar\u00adta\u00admen\u00adto per eli\u00admi\u00adna\u00adre le bar\u00adrie\u00adre archi\u00adtet\u00adto\u00adni\u00adche, in modo che Andrea Dick pos\u00adsa vive\u00adre nel modo pi\u00f9 indi\u00adpen\u00adden\u00adte pos\u00adsi\u00adbi\u00adle. La FSCMA ha richie\u00adsto, tra le altre cose, un pre\u00adven\u00adti\u00advo per un mon\u00adta\u00adsca\u00adle. \u00abIl mio con\u00adsu\u00adlen\u00adte del\u00adla FSCMA mi ha pro\u00adspet\u00adta\u00adto la mia nuo\u00adva indi\u00adpen\u00adden\u00adza come una visio\u00adne, riu\u00adsci\u00advo pro\u00adprio a imma\u00adgi\u00adnar\u00adme\u00adla \u2013 era come un sogno\u00bb, ricorda. <\/p>\n

Oltre agli adat\u00adta\u00admen\u00adti pra\u00adti\u00adci, il con\u00adsu\u00adlen\u00adte del\u00adla FSCMA \u00e8 al fian\u00adco di Andrea Dick anche dal pun\u00adto di vista men\u00adta\u00adle. L\u2019ha inco\u00adrag\u00adgia\u00adta a usa\u00adre un mez\u00adzo ausi\u00adlia\u00adrio, nel miglio\u00adre dei casi solo per un perio\u00addo limi\u00adta\u00adto, e a trar\u00adne bene\u00adfi\u00adcio inve\u00adce di rinun\u00adciar\u00advi del tut\u00adto. \u00abMi ha aiu\u00adta\u00adto mol\u00adto ad accet\u00adta\u00adre i mez\u00adzi ausi\u00adlia\u00adri e i cam\u00adbia\u00admen\u00adti nel\u00adla mia vita\u00bb, pro\u00adse\u00adgue. In fon\u00addo: da dicem\u00adbre 2024 c\u2019\u00e8 una dia\u00adgno\u00adsi probabile. <\/p>\n

\"La \"La \"La<\/p>\n

Foto 1: Nono\u00adstan\u00adte il duro col\u00adpo del desti\u00adno, Andrea Dick si aggrap\u00adpa alle cose bel\u00adle del\u00adla vita e rima\u00adne fiduciosa.
\nFoto 2: Il cam\u00adpeg\u00adgio in rou\u00adlot\u00adte era la sua pas\u00adsio\u00adne gi\u00e0 pri\u00adma del\u00adla malat\u00adtia \u2013 oggi \u00e8 pos\u00adsi\u00adbi\u00adle anche in carrozzina.
\nFoto 3: Nel pro\u00adpul\u00adso\u00adre E\u2011Motion, i moto\u00adri elet\u00adtri\u00adci sono inte\u00adgra\u00adti nei moz\u00adzi del\u00adle ruote<\/p>\n

La dia\u00adgno\u00adsi por\u00adta all\u2019accettazione
\n<\/strong>Dopo il lun\u00adgo per\u00adcor\u00adso di incer\u00adtez\u00adza, Andrea Dick ha pro\u00adba\u00adbil\u00admen\u00adte un nome per la sua malat\u00adtia: la sin\u00addro\u00adme di Ehlers-Dan\u00ad\u00adlos (EDS), vedi riqua\u00addro. Si trat\u00adta di un distur\u00adbo gene\u00adti\u00adco del tes\u00adsu\u00adto con\u00adnet\u00adti\u00advo che potreb\u00adbe spie\u00adga\u00adre mol\u00adti dei sin\u00adto\u00admi. Guar\u00addan\u00addo indie\u00adtro, emer\u00adge che i segni del\u00adla EDS era\u00adno pre\u00adsen\u00adti fin dal\u00adl\u2019in\u00adfan\u00adzia di Andrea Dick. Tut\u00adta\u00advia, solo la malat\u00adtia di COVID-19 e le rica\u00addu\u00adte han\u00adno sca\u00adte\u00adna\u00adto i sin\u00adto\u00admi. Gra\u00adzie alla dia\u00adgno\u00adsi, per Andrea Dick \u00e8 pi\u00f9 faci\u00adle accet\u00adta\u00adre la sua situa\u00adzio\u00adne e acco\u00adglie\u00adre l\u2019a\u00adiu\u00adto neces\u00adsa\u00adrio. Per mol\u00adto tem\u00adpo ha spe\u00adra\u00adto che le sue con\u00addi\u00adzio\u00adni miglio\u00adras\u00adse\u00adro. \u00abOra so che \u00e8 impor\u00adtan\u00adte vive\u00adre con la malat\u00adtia, inve\u00adce di com\u00adbat\u00adter\u00adla\u00bb, racconta. 
\n<\/strong><\/p>\n

Nono\u00adstan\u00adte tut\u00adte le limi\u00adta\u00adzio\u00adni, Andrea Dick ha degli obiet\u00adti\u00advi in men\u00adte. Vor\u00adreb\u00adbe tor\u00adna\u00adre a lavo\u00adra\u00adre. Al momen\u00adto la fati\u00adgue e i dolo\u00adri sono trop\u00adpo for\u00adti, quin\u00addi per ora non \u00e8 pos\u00adsi\u00adbi\u00adle. Tut\u00adta\u00advia, la sua fidu\u00adcia che si pos\u00adsa anda\u00adre avan\u00adti pas\u00adso dopo pas\u00adso \u00e8 incrol\u00adla\u00adbi\u00adle. \u00abCi vuo\u00adle tem\u00adpo, ma sono sicu\u00adra che pri\u00adma o poi riu\u00adsci\u00adr\u00f2 a fare di pi\u00f9\u00bb, affer\u00adma Andrea Dick. Sogna di viag\u00adgia\u00adre in Austra\u00adlia con il suo com\u00adpa\u00adgno di lun\u00adga data \u2013 nono\u00adstan\u00adte tut\u00adte le sfi\u00adde che un\u2019av\u00adven\u00adtu\u00adra del gene\u00adre com\u00adpor\u00adta in car\u00adroz\u00adzi\u00adna. Per il pros\u00adsi\u00admo anno, la cop\u00adpia sta pia\u00adni\u00adfi\u00adcan\u00addo una vacan\u00adza in Euro\u00adpa. \u00abA vol\u00adte biso\u00adgna sem\u00adpli\u00adce\u00admen\u00adte pro\u00adva\u00adre le cose. In qual\u00adche modo si fa sem\u00adpre\u00bb, dice con un sorriso. <\/p>\n

Ripen\u00adsa\u00adre la vita \u2013 e godersela
\n<\/strong>Oltre all\u2019a\u00adiu\u00adto pra\u00adti\u00adco del\u00adla FSCMA, le per\u00adso\u00adne che la cir\u00adcon\u00adda\u00adno gio\u00adca\u00adno un ruo\u00adlo fon\u00adda\u00admen\u00adta\u00adle. Un pun\u00adto di rife\u00adri\u00admen\u00adto costan\u00adte \u00e8 il suo com\u00adpa\u00adgno, che le sta accan\u00adto. \u00abNon \u00e8 scon\u00adta\u00adto che un part\u00adner ti sosten\u00adga cos\u00ec tan\u00adto. Lo ammi\u00adro mol\u00adto per que\u00adsto\u00bb, rac\u00adcon\u00adta. Anche lo scam\u00adbio con altre per\u00adso\u00adne col\u00adpi\u00adte, ad esem\u00adpio nel\u00adl\u2019as\u00adso\u00adcia\u00adzio\u00adne per i mala\u00adti di SM, le d\u00e0 for\u00adza e fidu\u00adcia. \u00c8 sta\u00adta accol\u00adta nel\u00adl\u2019as\u00adso\u00adcia\u00adzio\u00adne poi\u00adch\u00e9 nel suo caso spe\u00adci\u00adfi\u00adco ci sono paral\u00adle\u00adli\u00adsmi con la SM. Dice: \u00abLa vita \u00e8 trop\u00adpo bel\u00adla per arren\u00adder\u00adsi. A vol\u00adte biso\u00adgna solo rior\u00adga\u00adniz\u00adzar\u00adsi\u00bb. Trae for\u00adza anche dal\u00adla sua psi\u00adco\u00adte\u00adra\u00adpia rego\u00adla\u00adre. \u00abLa tera\u00adpia mi aiu\u00adta ad accet\u00adta\u00adre la situa\u00adzio\u00adne e a vede\u00adre di nuo\u00advo pi\u00f9 chia\u00adra\u00admen\u00adte gli aspet\u00adti posi\u00adti\u00advi del\u00adla vita\u00bb, affer\u00adma Andrea Dick 
\n<\/strong><\/p>\n

Per tro\u00adva\u00adre nuo\u00adve pro\u00adspet\u00adti\u00adve di fron\u00adte a gra\u00advi col\u00adpi del desti\u00adno, il giu\u00adsto sup\u00adpor\u00adto e una rete socia\u00adle for\u00adte sono enor\u00adme\u00admen\u00adte impor\u00adtan\u00adti. E gra\u00adzie alla con\u00adsu\u00adlen\u00adza del\u00adla FSCMA e ai mez\u00adzi ausi\u00adlia\u00adri, Andrea Dick orga\u00adniz\u00adza di nuo\u00advo la sua quo\u00adti\u00addia\u00adni\u00adt\u00e0 in modo autodeterminato. <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/section>\n \n\n \n\n

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Sin\u00addro\u00adme di Ehlers-Dan\u00ad\u00adlos (EDS)
\n<\/strong>Le sin\u00addro\u00admi di Ehlers-Dan\u00ad\u00adlos (EDS) sono un ter\u00admi\u00adne col\u00adlet\u00adti\u00advo per un grup\u00adpo di rari distur\u00adbi con\u00adge\u00adni\u00adti del tes\u00adsu\u00adto con\u00adnet\u00adti\u00advo. A cau\u00adsa di vari difet\u00adti gene\u00adti\u00adci, la strut\u00adtu\u00adra del tes\u00adsu\u00adto con\u00adnet\u00adti\u00advo \u00e8 alte\u00adra\u00adta in modo pato\u00adlo\u00adgi\u00adco. La malat\u00adtia com\u00adpor\u00adta un\u2019i\u00adper-mobi\u00adli\u00adt\u00e0 arti\u00adco\u00adla\u00adre gene\u00adra\u00adle nel siste\u00adma moto\u00adrio e una ridot\u00adta capa\u00adci\u00adt\u00e0 di cari\u00adco fisi\u00adco. Ci\u00f2 por\u00adta in mol\u00adti sog\u00adget\u00adti col\u00adpi\u00adti a con\u00adsi\u00adde\u00adre\u00advo\u00adli pro\u00adble\u00admi musco\u00adlo\u00adsche\u00adle\u00adtri\u00adci, fino all\u2019invalidit\u00e0. 
\n<\/strong><\/p>\n

Dai pri\u00admi sin\u00adto\u00admi alla dia\u00adgno\u00adsi pas\u00adsa\u00adno spes\u00adso anni o decen\u00adni. Il per\u00adcor\u00adso per arri\u00advar\u00adci \u00e8 lun\u00adgo e dif\u00adfi\u00adci\u00adle per chi ne \u00e8 col\u00adpi\u00adto; dia\u00adgno\u00adsi e trat\u00adta\u00admen\u00adti erra\u00adti sono pur\u00adtrop\u00adpo la rego\u00adla. Ci\u00f2 \u00e8 dovu\u00adto ai mol\u00adte\u00adpli\u00adci sin\u00adto\u00admi e alla com\u00adples\u00adsa for\u00admu\u00adla\u00adzio\u00adne del\u00adla dia\u00adgno\u00adsi. A que\u00adsto si aggiun\u00adge il fat\u00adto che la EDS \u00e8 una malat\u00adtia rara \u2013 ne \u00e8 col\u00adpi\u00adta cir\u00adca una per\u00adso\u00adna su 5000. (Fon\u00adte: Lega sviz\u00adze\u00adra con\u00adtro il reumatismo) <\/p>\n <\/div>\n \n\n <\/div>\n <\/div>\n <\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"

Quel\u00adlo che \u00e8 suc\u00adces\u00adso dopo la sua malat\u00adtia di COVID-19 ha stra\u00advol\u00adto il mon\u00addo di Andrea Dick. La vita atti\u00adva era ormai un ricor\u00addo del pas\u00adsa\u00adto. Una stan\u00adchez\u00adza cro\u00adni\u00adca mol\u00adto pro\u00adnun\u00adcia\u00adta e cre\u00adscen\u00adti limi\u00adta\u00adzio\u00adni del\u00adla mobi\u00adli\u00adt\u00e0 domi\u00adna\u00adva\u00adno la sua quo\u00adti\u00addia\u00adni\u00adt\u00e0. Gra\u00adzie a una for\u00adte volon\u00adt\u00e0, alla for\u00adza di chi le sta vici\u00adno e alla FSCMA, sta tro\u00advan\u00addo il modo di ricon\u00adqui\u00adsta\u00adre la pro\u00adpria indipendenza. <\/p>\n","protected":false},"author":16,"featured_media":17455,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"wp_typography_post_enhancements_disabled":false,"footnotes":""},"categories":[260],"tags":[3844,3845],"class_list":["post-19470","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sedia-a-rotelle-per-adulti","tag-sedia-a-rotelle","tag-sedia-a-rotelle-elettrica"],"acf":[],"yoast_head":"\nLa vita \u00e8 troppo bella per arrendersi | SAHB Hilfsmittelberatung<\/title>\n<meta name=\"description\" content=\"Quello che \u00e8 successo dopo la sua malattia di COVID-19 ha stravolto il mondo di Andrea Dick. La vita attiva era ormai un ricordo del passato. Una stanchezza cronica molto pronunciata e crescenti limitazioni della mobilit\u00e0 dominavano la sua quotidianit\u00e0. Grazie a una forte volont\u00e0, alla forza di chi le sta vicino e alla FSCMA, sta trovando il modo di riconquistare la propria indipendenza.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La vita \u00e8 troppo bella per arrendersi | SAHB Hilfsmittelberatung\" \/>\n<meta property=\"og:description\" content=\"Quello che \u00e8 successo dopo la sua malattia di COVID-19 ha stravolto il mondo di Andrea Dick. La vita attiva era ormai un ricordo del passato. Una stanchezza cronica molto pronunciata e crescenti limitazioni della mobilit\u00e0 dominavano la sua quotidianit\u00e0. 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